SEMINOLE, Fla. (WFLA) — A Seminole mother is preventing for her son’s well being after a uncommon dysfunction left him depending on a strict medical weight loss program. However now, she’s dealing with an surprising problem: shedding entry to the life sustaining meals he wants.
This is not nearly managing his situation, it’s a couple of healthcare hole that might put his future in danger.
Gideon Bennett was identified at beginning with a uncommon metabolic dysfunction that most individuals have by no means heard of. His mom, Elizabeth Bennett, mentioned it controls each a part of their each day life.
“It was a uncommon metabolic dysfunction known as phenylketonuria,” Bennett mentioned.
This situation means the 4-year-old cannot correctly course of proteins, and only a few grams may trigger irreversible mind injury.
“So, he can solely eat seven grams of protein every single day for the remainder of his life,” Bennett mentioned.
That strict weight loss program comes at a value — one her household has rigorously managed. However now they’re confronted with a brand new battle.
“He at the moment he is been on kids’s medical companies by Medicaid, however he’s on the brink of lose protection. And we can’t discover a single insurance coverage supplier that covers medical meals, “Bennett mentioned.
Regardless of the medical necessity, she mentioned Florida legislation does not require protection for the specialised meals.
Their family revenue is greater than the $40,000 restrict to qualify for state help. This implies households like hers are left to pay out of pocket.
“I’m his mom. I am presupposed to be there to guard him, and the state is getting in my approach to cease me from doing that,” Bennett mentioned.
His mom is asking for change. She mentioned no household ought to have to decide on between monetary stability and their youngster’s well being.
